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Hello Reddit 🐦👽🪽 Please Be Kind. (Or not, I don’t have the authority to tell anyone what to do…but I encourage all of us to fight against the negative impact of toxic internet bans and create a productive and safe environment for everyone 🪽⚡️) Okay, let’s get this out of the way. I am a 33 year old female. This still works. I will post the first pictures and the “now” pictures. I had a flare up that started on my face when I moved into a very old home in Nashville, TN on 9/3/23 (yes, 2 years ago now). It slowly spread through my body in October. I have tried literally every topical (anti-fungal + steroid) and oral medication. He replied that everything is fine. I was on Doxycycline for 3 months but I was getting off it and it was slowing it down a bit. I went back home to the DMV and the dermatologists/and ❗️hospitalS❗️ I’ve been in and out of put me on biologics like Dupixent and now Nemluvio. My big skin here did a biopsy and it was a bucket list diagnosis of eczema but every doctor I’ve seen says “that doesn’t look like eczema”. I never bite again? Not once. At all. Simple mupirocin and Vaseline at the hospital (and incontinence pads- and kept there for a week…no joke, so I won’t answer you- it doesn’t sting but it feels. Hard to describe). Please don’t tell me this is Morgellon’s. I fired my therapist of 5 years more than that (not really but you get my point). It’s so confusing and I need something more concrete than that because I’ve done EVERYTHING and nothing works. Got my contact dermatitis allergy panel- had 7 come back- I applied pretty much everything I had and started over and moved in with my parents to basically confirm the fish tank area – had to quit my job, sick leave from school, be on my own in 2025. This took my life away. The new derm I last saw took a swab from one area and came back with little staph left which makes sense because in May 2023, the derm took a swab and said I had MRSA which could not be treated with antibiotics. But here’s the deal- everyone agrees that MRSA/staph is not the cause- I recently got MRSA/Staph from having over 100 open sores on my body wondering about my health most of the time I didn’t care bc I had no medical help/care for a while. Yes, that’s what the papers say now “Over 100 open wounds/sores”. So Out of Control. My PCP has been trying to get me into Infectious Disease even though he doesn’t know what else to do. My skin has been really good my whole life- everywhere- I’ve been really blessed and I’ve never worried, I’ve never struggled with it- I’ve always slept with make up on, never used fancy products or 10 steps, forgot to wash my face all the time and it doesn’t matter… Hints that doctors won’t listen to that I think are somewhat helpful: I moved into an old house that wouldn’t pass code and I wouldn’t have been allowed to rent on the market if it wasn’t for him and privately rented by a church in a shared neighborhood…an award-winning architect (who knew what he was talking about) came home and was shocked. I also ended up unknowingly bringing in a tree with mites around this same time (early September), a bird of paradise tree, and put it on a jute rug in my sunroom (small boutique garden stores seriously sell 5-6ft trees with MITES to customers? Why am I so stupid? Is that a normal thing to do? Tough question but I remember walking around like crazy butemites… not once and every derm is this assures me I do NOT have worms or parasites. The derm I work with here in DC even gave me Ivermectin to throw it off (lol). No new meds were taken at that time (9/2/23) I had to get 6 gold piercings, MX in my ear at one time and it got infected. I shot myself in the butt to fix it when I got home but that was March/April 2023 and the start of this… disease (?)… And before you mention excoriation disorder- I was open minded about that- I changed all meds, went to a psych ward basically all summer (I loved it!), I made myself a human vegetable from sedatives (and when they sent me home- I couldn’t stand up or take care of myself- my mom had to literally feed me and bathe me- I had my hands “rested” for two weeks), (someone literally watches you 24/7- or washes and uses the toilet- yep), and, since you see, my fellow reddit martians, the mystery patches stay strong. They took me off sedatives/seroquel/OCD meds/memantine/literally tried it all and nothing changed- the skin looked the same. So no, I don’t believe it is “mentally”, “in my head”, and I don’t choose anything. I don’t use drugs, and I don’t drink alcohol. I eat extremely clean – to the point of exhaustion now – I try to use food as every medicine I can find. I have tried eastern/western/Ayurvedic medicine techniques. I honestly started getting paranoid and coming up with conspiracy theories sometime this year because honestly WTF IS GOING ON. Did someone try to poison me? Is this a dark web biologic attack from my archenemies who hate to see me win so bad they’re trying to take me out new age cyberpunk style? LMK. Anyone want to take a shot?! I will answer all questions ASAP. I’m sure I left out details, I’m a bit of an egg rambler. 🥚 🪽 bless you if you made it this far🪽 Posted by UrielAngel1117 |
